Resources for MoCD Type A | Rare Disease Education By Sentynl Therapeutics, Inc.

Download this guide for information about how to talk with your child’s doctor about testing for MoCD Type A

Conversation guide produced by Sentynl Therapeutics, Inc.

Resources available for parents and caregivers

To find more information about sulfite intoxication disorders, visit:

Child Neurology Foundation

Get connected with other caregivers, families, and healthcare professionals caring for a child with MoCD Type A by joining or starting your own support group at:

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Resources available for parents and caregivers

To find more information about sulfite intoxication disorders, visit:

Child Neurology Foundation

Get connected with other caregivers, families, and healthcare professionals caring for a child with MoCD Type A by joining or starting your own support group at:

Find a rare disease treatment center

Although there are currently no sulfite intoxication disorder specialty facilities, the NORD Rare Disease Centers of Excellence are recognized for their high-quality specialized care for children and infants living with rare diseases, like MoCD Type A.

Find the closest center

Become an advocate for MoCD Type A

Advocate for MoCD Type A to be included in standard newborn screening by contacting your local representative or starting a petition for your state. Find your local representative at congress.gov today, or visit one of the following organizations to learn more:

Sign up today to receive more information about MoCD Type A

caregivers and family advocating for MoCD Type A

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Start learning about MoCD Type A today

Download this guide for information about how to talk with your child’s doctor about testing for MoCD Type A

Resources available for parents and caregivers

Thank you for registering.

Looking for additional information?

Resources available for parents and caregivers

Find a rare disease treatment center

Become an advocate for MoCD Type A

Sign up today to receive more information about MoCD Type A